Carol's Cancer Blog

Brief Update

First it all let me correct myself and say I was diagnosed with Dermatomyositis after studies were done by Vanderbilt  on a skin biopsy and muscle biopsy to confirm the disease diagnosis.

I was in the hospital for 61 days where doctors and medical staff were working to stabilize me. I had several issues which occurred and thankfully have resolved to the point I'm now in skilled nursing care facility trying to restore my mobility and body functions. I'm making progress but it is slow. The Dermatomyositis is the villain in that regard.

After three rounds of chemotherapy a CT scan revealed that the chemotherapy was working. I have two rounds left then another scan. My oncologist says we'll either pause or be done. 

I was apprehensive about chemotherapy thanks to anecdotal "horror stories " but chemotherapy has not been the monster I feared. Thanks to the premedications many/most side effects have been minimal. The worst was chemo mouth after round three. Since I've gotten stronger the fatigue I felt after chemo has lessened. I am grateful for that. Unfortunately my port was removed thanks to a staph infection which was a bugger to deal with. I'll also give a shoutout to pulmonary blood clots and IVC filters. Wear your leg squeezers.

Thanks for your support and I'm staying positive and focused. 

PS: Lost a lot of hair after first two rounds of chemotherapy but not much loss since. :)

Olga threw a punch at your cancer.
Olga sent you a hug.
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Plot twist

Hi everyone

 

I've been in the hospital since June 18  I've had two chemo treatments and several complications one that has landed me in the ICU since July 15. 
I have dermal  poliomyelitis. 
Chemo treatments really haven't  been an issue at all. 
 

Olga sent you a hug.
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Thank you for the updates, Carol. Praying for you
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I'm sorry you had this complication but impressed with the care you're receiving. Being in ICU, I know a pain in the ass, but I'm guessing they have you sleeping quite a bit. Hopefully you will be out soon. You went quite a while NED before this reoccurrence and I believe that's a better scenario than a fast turn around. Blessings.
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Vital Info

Posts

February 24, 2016

Nashville, Tennessee 37228

December 31

Cancer Info

Endometrial Adenocarcinoma

January 19, 2016

Stage 1

over 6.1

Grade 3

No

Hysterectomy

It's a stealth, secretive, insidious, murdering scum.

No

No

lower lungs 30+ nodules

No

St. Thomas Gynecological Oncology

stay nourished.

Yes, May 2020

Recurrent - progressively increasing bleeding and right rear flank pain. Primary doctor incorrectly treated it as kidney issue. 2020. Also have Dermatomyositis confirmed by muscle biopsy.

No

No

No

No

No

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